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Just Me

Occular Update

Posted on 2007.11.27 at 01:32
So, first, a piece of information I didn't have previously: This past Friday, Cindy had flashes of light in her left eye.

Those with experience in this are going "Ah-Hah!"

Yes, that's right, it's a detached retina. I'm fairly bullshit -- American slang for "angry" -- that her eye doctors didn't catch this when she went to them for the vision loss on Saturday. Cindy says that, having had corneal replacement surgery, it's very hard to see without a special instrument. I say that an outfit marketing itself as eye-care specialists should have that special instrument and use it when a patient reports the classic symptoms.

It's pure dumb luck that this was found. Here's teh deal. Cindy realized that she was, in fact, too heavy for the CAT scanner at our local hospital, and calling around, discovered that the only one in our part of the state that could handle her was at the Beth Israel Deaconess Medical Center in Boston, MA. The doctors therethought that, rather than just do a cat scan, they should take things in order, from scratch, and called in their on-call ophthalmologist, who did an in-depth exam with the "Special" instrument, and saw the retinal detachment.

This is incredibly serious, calling for emergency surgery. If the surgery is not done, and promptly, she will lose vision in her left eye.

The first thought was to do it immediately, but it was 11:00 pm (We arrived there at 4:00 pm) before the diagnosis was made, and it was decided to schedule the surgury for Tuesday morning at 8:30.

So, home for a frantic few hours sleep, then off again at God's own hour tomorrow to get her into Beth Israel's eye clinic in time for her surgery.

The appalling part is that, were she not as heavy as she is, my wife would have had her cat-scan, shown no intracranial pressure, and lost her vision in her left eye. It's only the sheer dumb luck of needing to go to that one hospital which has allowed it to be saved.

Thanks to all for the love and support. More news tomorrow!


cyclonejuliet at 2007-11-27 06:57 (UTC) (Link)
I just read your previous post.
Firstly - good news that they have found out what the go is, and that the correct treatment will now be happening. Secondly - all the best for Cindy's surgery. I will be thinking and praying for you both.
I have an Illudium PU-36 Explosive Space Modulator
simons_flower at 2007-11-27 07:31 (UTC) (Link)
Though I'm agnostic leaning toward atheist, I've come to believe that certain things happen for a reason.

While I'm sorry to hear of the seriousness of her situation, she's probably in one of the best places to have it fixed.

Thinking of you both.
elfwhistletree at 2007-11-27 09:01 (UTC) (Link)
Bloody hell!

Thanks heavens that by chance you ended up in the right hospital, and the doctors there are on the ball.

I assume that in due course the eye doctors will be receiving a carefully worded letter of complaint from you ( or perhaps a Bat Bogey hex! )

Hope all goes smoothly today.


harrysmom at 2007-11-27 11:36 (UTC) (Link)
Hugs to you and Cindy, Jon! You'll both be in my thoughts today. Keep us informed.
*massive hugs*
mrsquizzical at 2007-11-27 13:01 (UTC) (Link)
oh man. *hugs you*

i typed an im that said 'something that sounds similar happened to my dad. it was a detached retina. they should check for that really soon!' and then i thought - shut up and stop acting like you know. it's probably something completely different....

i'm so glad they DID catch it. all the best for the surgery.

*more hugs* for all the other crap that goes with having someone going through the hospital stuff.
mench at 2007-11-27 13:17 (UTC) (Link)
I'll think of her and pray for a speedy recovery.
nakeefeet at 2007-11-27 13:41 (UTC) (Link)
Thank God they found what was wrong! Still, I can understand how utterly pissed off you'd be that the first doctor didn't find it. How frustrating.

*sends good vibes to you and your wife for a successful surergy*

Jenna: fomerly chocolate_coins
jennashaped at 2007-11-27 13:50 (UTC) (Link)
I know I've talked to you about this already, but I just wanted to tell you I'm thinking of you, and I hope everything goes alright. *hugs*
Gummo Bergman's "Silent Strawberries"
marginaliana at 2007-11-27 13:59 (UTC) (Link)
*hugs* I'm glad they caught it! I'll be sending you both good thoughts.
herrbgone at 2007-11-27 14:29 (UTC) (Link)
It never ceases to amaze me how occasionally things that seem at first to be a major PITA (not being able to use the local CT scanner) sometimes work out to be a blessing in disguise by putting you in a place where the true nature of the problem (which would not have been detected by the apparatus that couldn’t be used anyway) is found. Kudos to B.I.D. for doing their own work-up ‘from scratch.’

It also never ceases to amaze me how often supposed specialists miss what in retrospect should have been obvious! You are right on the money that the first place you went – given their self proclaimed specialization – should have had the wherewithal to get this right pretty much from the start. It makes you wonder what else they’ve missed.

Please let Cindy know that we’re thinking of her, and keep us up to date with how things are going.

Feel free to call any time you need something, even if just to talk/vent. I’ll let you call me so I don’t interrupt any cat naps you might be able to catch throughout the day. (Or any other important things you might be attending to for that matter...)
the source of all heresies
ms_worplesdon at 2007-11-27 14:36 (UTC) (Link)
Wow! Fate is a weird, weird little beast, isn't it? I'm so glad that it was caught, in spite of the fuck ups along the way.

I'll send good vibes for a successful surgery!

deena beena bo beena
almond_joyz at 2007-11-27 14:39 (UTC) (Link)
You know, I was thinking detached retina in your first post. I'm also a "survivor" and would have lost vision in both eyes almost ten years ago. Now that's scary.

My story in a nutshell...I was shopping and noticed half the vision in my right eye was blurry. Went to see the doctor (family practice) and she wasn't able to find anything. Scheduled an MRI and that came back normal (I actually fell asleep in the damn thing!). I had an appointment with the eye doctor and he found the detachment. My parents were luckily visiting at the time and the next day, a Saturday, we left at 5am to drive to Minneapolis where I had eye surgery at the Phillips Eye Institute. They put a scleral buckle on my eye and I am now back to 20/30 with correction in that eye. If diagnosis was delayed for another day or two, the tear would have gone past the midpoint and they wouldn't have been able to fix it. The other eye was starting as well, so they froze that section.

I am truly grateful for my eye doctor and as long as he is in business, I will continue to see him. He saved my sight and no one else will take care of my eyes if I can help it. The simple fact that I am able to see my children and husband made it all worth it.

Please let Cindy know I'm thinking of her and that things will get better. If you have any questions at all, please don't hesitate to ask.

Many hugs to both of you.
amythis at 2007-11-27 16:21 (UTC) (Link)
dream_wia_dream at 2007-11-27 17:30 (UTC) (Link)
Oh hell! I'm sending massive loads of happy thoughts your way today. Hoping everything works out well. I will refrain from ranting about doctors because I'm maintaining positive energy for the both of you.

Good luck!

i_m_b00 at 2007-11-27 17:33 (UTC) (Link)
I am so glad that the Dr. were able to find the real issue without wasting a lot valuable time. I pray that they surgery goes well and she up and reading soon.

*hugs you both*
xedra at 2007-11-27 19:02 (UTC) (Link)
I just read your last post.
*BIG HUGS* to you both!
I'm so glad she's in the ruight place to get the treatment she needs.
You're both in my thoughts and prayers.
herrbgone at 2007-11-27 20:16 (UTC) (Link)


Per a text message from Leviathan0999 I just received: Cindy is in the OR now. The operation should last about 90 minutes.
scribhneoir1 at 2007-11-27 20:17 (UTC) (Link)
I just read about this. I'll be thinking of you both during this difficult time.
alissomora at 2007-11-27 20:22 (UTC) (Link)
I've only just seen the previous post and wow. I'll be thinking good thoughts that the surgery went well and that Cindy's sight will be saved. Thinking of you both.
herrbgone at 2007-11-27 22:09 (UTC) (Link)


This just in: Surgery went well. The last few stitches are going in now. I’m sure Leviathan0999 will have a detailed update before too long.
shygryf at 2007-11-28 03:41 (UTC) (Link)
I'm glad things worked out in the end!
bouncing leaf
bouncingleaf at 2007-11-28 04:02 (UTC) (Link)

That's what I get for not reading LJ for days. Now I know why j was asking me (out of context) "How's Cindy?"

Sheesh. Add more love and support to the pile from me. *hugs to you both*
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